Foundation Fighting Blindness: Honoring Karen Petrou: A Visionary Leader and Champion for the Community
February 23, 2026
Remembering Karen Petrou, whose strategic vision, personal courage, and unwavering commitment helped shape the future of inherited retinal disease research.
The Foundation Fighting Blindness community mourns the loss of Karen Petrou, our Board Chair, who passed away after a private battle with liver cancer. Throughout her many years of service to the Foundation, Karen was an extraordinary force for progress, advocacy, and hope for everyone affected by inherited retinal diseases.
Of all the roles Karen held in her distinguished career, from co-founding a prominent financial services firm to advising Congress and international institutions, it was serving as Board Chair of the Foundation Fighting Blindness that she cherished most. Karen often said it was the highest honor of her life, a joy and privilege that gave her profound purpose. For those of us who had the honor of working alongside her, we know that the privilege was entirely ours.
Karen’s journey with the Foundation began where so many of our stories do—with a diagnosis. At 18, she was told she had retinitis pigmentosa and would be completely blind by 25. The prognosis proved devastatingly wrong. Karen didn’t lose her ability to read until her thirties and didn’t require a guide dog until she was in her 50s—testament to how little was understood about the natural progression of inherited retinal diseases at that time. Rather than let this define her limitations, Karen went on to build a remarkable career as co-founder and managing partner of Federal Financial Analytics, becoming